Category Archives: MSLOL-Radio

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MSLOL Radio- Humor Me! Finding the funny while living with MS

On Wednesday October 19th at 8pm (EST) we will disclose a mostly unknown, un-adverstised treatment for MS that has no side effects, no co-pays and can be taken every day, all day with no possibility of addiction. Hmm…that may not be true. Let’s just say that any addictive state can be legally and safely fulfilled.

It’s all about finding and using humor to cope… But you knew that didn’t you. I mean… you read the title!  Join us at 8pm on Wednesday to hear the accounts of 5 armchair comedians who have MS and can’t cope without it, and two professional stand-up comedians living with MS who make us laugh about it even when they/we can’t stand up. We’ll hear from Jonathan Katz (of Dr. Katz, Professional Therapist fame) and British comedian Jim Sweeney (of The Comedy Store and Whose line is it Anyway, fame.)  Check out the Jonathan Katz interview with Trevis Gleason on EverydayHealth.com and Jim’s one man show My MS and Me. Both will help you find a spin on the most challenging of MS experiences that will likely have you nodding and laughing throughout.

Jim Sweeney, Improvisationalist Comedian with MS

MY MS and ME with Jim Sweeney

Dr Katz, Professional Therapist whose not a therapist, but does have MS

Dr. Katz: Professional Therapist

So, here it is once again (For me and MS cog fog peeps- repetition can be helpful me thinks. Granted cutting and pasting in iCal email alerts is even more helpful!)

Humor Me: Wednesday October 19th at 8pm (EST)
Use our new toll free number: (877) 774-3194
or listen on line at Blog Talk Radio …Oh, and while you’re there… hit that “follow” button, it’s the blue one with the word “follow” on it. This way you will be in the know and impress those of us who can’t remember anything!

Are you looking for that show you loved, the one from earlier this year?  Click here, and feel free to lather, rinse repeat!

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MSLOL Radio’s show 10: Guiding Paws

Join us on Wednesday July 13th for MSLOL Radio’s next show when we will meet some peeps who are living & loving & thriving with their guide dogs as well as the peeps whose life mission is to make the smart canines available to the many who can benefit from the. You’ll hear how lives improve starting with that first scratch behind the ears.
Learn what these pups can do to help with the many challenges PWMS deal with every day and prepare to have those heart-strings pulled, when they tell us about the unconditional love they share with them. How cool is that? A pupper that can help you with your daily tasks and soothe your emotional needs… And they don’t even hog the remote!
Tune in on Wednesday the 13th at 8pm EST
If you have a “tail” to share, we’d love to hear from you.

Getting help getting goods

Call toll free to listen (877) 552-4068- press 1 if you have something to say or listen on line at http://alturl.com/xkznc

Brenda and Liberty Celebrate

Taking a break after a long stroll

Liberty's got lunch!

Dean Kramer and Trisket

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Dear Blog: I’ll make it up to you~

I know, I know. You are shaking your proverbial head, clucking your proverbial tongue saying, I knew after that LJBF (let’s just be friends) letter that you would forget about me. But please, blog, let me explain.

You see, the writing at MS Health Central has really picked up and I’m finding the content of that site to be valuable; I’m honored to be a part of it. And get this- I’m doing a video project there as well. (of course I could be doing the same with you, just saying..)

Then there is Wego; an incredible site that “Empowers Health Activists.” (check out the link to see what that means! It’s the blue word “Wego.” But of course you know that!) There are some very exciting things happening on that site and I’ve been contributing in many ways.  I was recently on a panel talking to pharma on behalf of the MS community.  And…I’ve  been a part of video conversations with meaningful topics like “The Decision to Use an Assistive Device”– but those haven’t launched yet, so you wouldn’t know about it. (I’ll be sure to keep you “posted” if you are interested!) Oh, and most recently I’ve been looking for other people with MS who want to be in these video conversations. So blog, please spread the word.. I’m sure that there are a lot of people with MS who would love to participate… and you are still in my top 3 list of reaching out to peeps with MS. (PWMS)

I’ve also been very busy with MSLOL Radio– the monthly webcast that highlights people who have a significant role in the community. And there are so many! (I hope you noticed that I used your name for this show; so you should feel honored.) Because I want to “give the people what they want” I am taking suggestions for topics.

And then there is MS SoftServe. Of course I’ve been talking about this with you for ages now. But things are ramping up. We have applied for our first grant and have many more apps on deck. Getting this site up and running is imminent and it will not only be invaluable to the newly diagnosed, but also to the long term-ers who don’t want to know about every possible MS symptom that may never effect them. (MSSoftServe.org is the staging ground.) And there are some amazing features for individualizing the learning experience. Oh, I forgot to tell you… I have another blog dedicated to MSSoftServe. Perhaps you’ve run into each other at the water cooler. This has been so helpful in keeping everyone up to date on our progress.

Please don’t look at me that way. I promise I won’t go so long without a meaningful entry. Hey, here’s what I’ll do… I won’t just post links to my other writings – I’ll post information about the links. That way people will stop and read you for a bit- and it will keep you update on where I am. How does that sound?

I won’t say how important you are to me; I don’t want it to sound hollow. I’ll just prove my loyalty to you and not go months without talking to you. You’ll see. It will be great!

Thanks for being my BBF*.

Love, Amy

*best blog forever!

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It’s tonight!! MSLOL-Radio:CCSVI- Been there, done that~

Tune in tonight to hear the experiences of 6 individuals who have had the procedure and are happy to tell us all about it.

And for the first time ever, in the 6 month history of this show, we have an 800 number to call in. (Actually it’s an 877 number, but you get the drift!) And… if that’s not enough, you can also message us. So, if you are listening in and have a burning question, yet don’t want to hear yourself on the radio… send it to IM address, mslolradio.and we’ll say em for you!

Call Toll Free at: 1 (877) 552-4068 at 8pm tonight!

Speak to you then!

Details Details Details!

 

 

 

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MSLOL Blog Radio- MS Activated!

It’s tomorrow!

Now consistently the first Monday of every month- “Tune” in MSLOL Radio!
Show 5: MS Activated!
Join us on Monday, February 7th at our new time (8pm EST) when you will meet two amazing women who took their diagnoses, put them on placards and marched until their voices were heard. Rachel Dykoski and Fiona Hoey have worked tirelessly to do right by the MS community. Find out just how they represent and how their efforts impact each and every one of us from the “living with it” delegation.

And call in! We love to hear from the MS community at large. Make your voice heard!

CALL IN LIVE (714) 510-3712 & PRESS 1 TO TALK!! or

Listen to internet radio with RaeFlectionsMe Radio on Blog Talk Radio

Here is the blog talk radio site. If you “follow” you’ll never miss a beat!

And here is the blogspot for yet more info.

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MSLOL-Blog Radio: Yoga and Motivation and Inspiration, oh my!

As you are recovering from your TG over-indulgence, tune in to what promises to be an awesome MSLOL-Blog Radio show!  You’ll meet two remarkable people living with it. Larissa Nusser-Meany and Michael Weiss have taken their MS diagnoses and found a way to help the rest of us cope with our lot.

So wipe the cranberry sauce from your chin and mark your calendars to call in to MSLOL-Blogradio Monday, November 29th at 7pm. You’ll have a few more items to add to your list of what to be “thankful” for.

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MSLOL-Radio — Listen Up!

In case you haven’t heard the good word, let me be the first to tell you that MSLOL is coming to blog-radio. Join me on Monday, September 27th to hear the audio component of this blog. Very exciting times, these are.

How will that play out, you ask?    I’m not sure.

I can say I’m great at talking and laughing and speaking of my life mission (the MS SoftServe one!)  I’m happy to tell anyone just about anything about my experience with MS.

Ok, so that’s two things.

Oh, and each show I will interview a person from the MS community. (Isn’t that a nice vague requirement?) The debut show guest will be Kim Gledhill, a fascinating woman who has been living with MS for 14.5 years and has an interesting story to tell. She is part of the constantly growing community of people “living with it” on Facebook.  You know, the social network  that connects you to all of your long lost friends and those who you’ve passed on the street once. What you may not know is that Facebook  is an incredible resource for those of us living with that two letter suffix;  and prefix for the those of us who are women. (As I like to say, I’m MS-squared!)

So here is the ticket to listen:

Here you will find out important facts like that it will “air” September 27th which is a Monday, at 7pm EST and how to log on. And check this out, you can listen online or via your phone.  Ah, modern technology! And don’t lose sleep if you still can’t make that time slot. I will be posting the audio file here.  Of course if you are listening live, you can call in to ask or comment on whatever you so desire. (Let’s keep it MS related, shall we?)

Looking forward to “See-ing” you Monday.

That’s Ms. Amy Gurowitz to you!