Smash Your Halloween Pumpkin for PWMS!

Challenge Accepted!

If you dumped a bucket of ice for the whole world to see, then contributed to the ALS association you were a part of a worldwide effort. Cos your contribution helped raise $115 million for that organization. That’s $95 million more than was raised last year for this cause.  And even if you didn’t make a direct donation, by spreading the word about this disease to others via social networking you were key to the best charitable effort ever.  Awareness is 90% of giving- because afterall you can’t know what you don’t know and you can’t support an organization for a condition that you didn’t know exists.

Stomp it out, smash it out, waaayyy out.

So let’s spread the word and raise a few dollars for what will be an important part of coping for people who are living with MS (and peeps who care about them).  MS SoftServe is a non-profit .org that will put learning and teaching about MS in the control of all of us who are living with it. It is a customizable learning website will lessen anxiety and empower us on new levels. Check out this link to learn more about MSSoftServe and this one to donate.

Why Halloween is the Perfect time for MS fundraising!

  • Orange is the color of the designated ribbon for MS
  • MS is sooo scary.
  • Stomping on a pumpkin to metaphorically stamp out MS is sooo satisfying!

Cut to the Cut Amy!

Many of us will carve a pumpkin and put it on our porch on  October 31st. But what to do with it on November 1st? Before it hits the trash or the compost heap why not smash it, video tape it and spread the word about this effort. Getting the word out about our effort is so important and a few donations wouldn’t hurt in getting us closer to our goal.

ms-ribbon-2 nevergiveuptattooribbon round pole peacelovehope

Shhhh! Did you hear? There is an MS SoftServe update!

Just to be fair, I thought I should let one blog know what the other is doing. And the other is all MS SoftServe… not all Amy musings. Come to think of it, it’s Amy musings about MSSoftServe. (Hopefully you know what MS SoftServe is- or this will merely be evidence of  a mind long lost!)

So, in my ongoing effort to prevent sibling rivalry- I ask that you please check out mssoftserve.wordpress.com.

I’d rather not split them up again. Last time was a nightmare! You know how it goes- one starts pulling the other’s hair and then there’s biting… oh wait. That’s me and my sister in the early 80s … Sigh. Just read the blog(s)!

Dear Blog: I’ll make it up to you~

I know, I know. You are shaking your proverbial head, clucking your proverbial tongue saying, I knew after that LJBF (let’s just be friends) letter that you would forget about me. But please, blog, let me explain.

You see, the writing at MS Health Central has really picked up and I’m finding the content of that site to be valuable; I’m honored to be a part of it. And get this- I’m doing a video project there as well. (of course I could be doing the same with you, just saying..)

Then there is Wego; an incredible site that “Empowers Health Activists.” (check out the link to see what that means! It’s the blue word “Wego.” But of course you know that!) There are some very exciting things happening on that site and I’ve been contributing in many ways.  I was recently on a panel talking to pharma on behalf of the MS community.  And…I’ve  been a part of video conversations with meaningful topics like “The Decision to Use an Assistive Device”– but those haven’t launched yet, so you wouldn’t know about it. (I’ll be sure to keep you “posted” if you are interested!) Oh, and most recently I’ve been looking for other people with MS who want to be in these video conversations. So blog, please spread the word.. I’m sure that there are a lot of people with MS who would love to participate… and you are still in my top 3 list of reaching out to peeps with MS. (PWMS)

I’ve also been very busy with MSLOL Radio– the monthly webcast that highlights people who have a significant role in the community. And there are so many! (I hope you noticed that I used your name for this show; so you should feel honored.) Because I want to “give the people what they want” I am taking suggestions for topics.

And then there is MS SoftServe. Of course I’ve been talking about this with you for ages now. But things are ramping up. We have applied for our first grant and have many more apps on deck. Getting this site up and running is imminent and it will not only be invaluable to the newly diagnosed, but also to the long term-ers who don’t want to know about every possible MS symptom that may never effect them. (MSSoftServe.org is the staging ground.) And there are some amazing features for individualizing the learning experience. Oh, I forgot to tell you… I have another blog dedicated to MSSoftServe. Perhaps you’ve run into each other at the water cooler. This has been so helpful in keeping everyone up to date on our progress.

Please don’t look at me that way. I promise I won’t go so long without a meaningful entry. Hey, here’s what I’ll do… I won’t just post links to my other writings – I’ll post information about the links. That way people will stop and read you for a bit- and it will keep you update on where I am. How does that sound?

I won’t say how important you are to me; I don’t want it to sound hollow. I’ll just prove my loyalty to you and not go months without talking to you. You’ll see. It will be great!

Thanks for being my BBF*.

Love, Amy

*best blog forever!

MSLOL-Blog Radio: Yoga and Motivation and Inspiration, oh my!

As you are recovering from your TG over-indulgence, tune in to what promises to be an awesome MSLOL-Blog Radio show!  You’ll meet two remarkable people living with it. Larissa Nusser-Meany and Michael Weiss have taken their MS diagnoses and found a way to help the rest of us cope with our lot.

So wipe the cranberry sauce from your chin and mark your calendars to call in to MSLOL-Blogradio Monday, November 29th at 7pm. You’ll have a few more items to add to your list of what to be “thankful” for.

MSLOL-Radio — Listen Up!

In case you haven’t heard the good word, let me be the first to tell you that MSLOL is coming to blog-radio. Join me on Monday, September 27th to hear the audio component of this blog. Very exciting times, these are.

How will that play out, you ask?    I’m not sure.

I can say I’m great at talking and laughing and speaking of my life mission (the MS SoftServe one!)  I’m happy to tell anyone just about anything about my experience with MS.

Ok, so that’s two things.

Oh, and each show I will interview a person from the MS community. (Isn’t that a nice vague requirement?) The debut show guest will be Kim Gledhill, a fascinating woman who has been living with MS for 14.5 years and has an interesting story to tell. She is part of the constantly growing community of people “living with it” on Facebook.  You know, the social network  that connects you to all of your long lost friends and those who you’ve passed on the street once. What you may not know is that Facebook  is an incredible resource for those of us living with that two letter suffix;  and prefix for the those of us who are women. (As I like to say, I’m MS-squared!)

So here is the ticket to listen:

Here you will find out important facts like that it will “air” September 27th which is a Monday, at 7pm EST and how to log on. And check this out, you can listen online or via your phone.  Ah, modern technology! And don’t lose sleep if you still can’t make that time slot. I will be posting the audio file here.  Of course if you are listening live, you can call in to ask or comment on whatever you so desire. (Let’s keep it MS related, shall we?)

Looking forward to “See-ing” you Monday.

That’s Ms. Amy Gurowitz to you!

What is that word(s)?

Don’t you hate it when you have something to say, it’s right on the tips of your fingers, yet it remains elusive? Elusive is such a great word,  don’t ya think? But it isn’t the one I’m looking for!

Please check out my post on MS Health Central that goes in to stunning detail about all of the words I can’t find and as a result tells you all about MS SoftServe. 😉