MSLOL Radio’s show 10: Guiding Paws

Join us on Wednesday July 13th for MSLOL Radio’s next show when we will meet some peeps who are living & loving & thriving with their guide dogs as well as the peeps whose life mission is to make the smart canines available to the many who can benefit from the. You’ll hear how lives improve starting with that first scratch behind the ears.
Learn what these pups can do to help with the many challenges PWMS deal with every day and prepare to have those heart-strings pulled, when they tell us about the unconditional love they share with them. How cool is that? A pupper that can help you with your daily tasks and soothe your emotional needs… And they don’t even hog the remote!
Tune in on Wednesday the 13th at 8pm EST
If you have a “tail” to share, we’d love to hear from you.

Getting help getting goods

Call toll free to listen (877) 552-4068- press 1 if you have something to say or listen on line at http://alturl.com/xkznc

Brenda and Liberty Celebrate

Taking a break after a long stroll

Liberty's got lunch!

Dean Kramer and Trisket

Dear Blog: I’ll make it up to you~

I know, I know. You are shaking your proverbial head, clucking your proverbial tongue saying, I knew after that LJBF (let’s just be friends) letter that you would forget about me. But please, blog, let me explain.

You see, the writing at MS Health Central has really picked up and I’m finding the content of that site to be valuable; I’m honored to be a part of it. And get this- I’m doing a video project there as well. (of course I could be doing the same with you, just saying..)

Then there is Wego; an incredible site that “Empowers Health Activists.” (check out the link to see what that means! It’s the blue word “Wego.” But of course you know that!) There are some very exciting things happening on that site and I’ve been contributing in many ways.  I was recently on a panel talking to pharma on behalf of the MS community.  And…I’ve  been a part of video conversations with meaningful topics like “The Decision to Use an Assistive Device”– but those haven’t launched yet, so you wouldn’t know about it. (I’ll be sure to keep you “posted” if you are interested!) Oh, and most recently I’ve been looking for other people with MS who want to be in these video conversations. So blog, please spread the word.. I’m sure that there are a lot of people with MS who would love to participate… and you are still in my top 3 list of reaching out to peeps with MS. (PWMS)

I’ve also been very busy with MSLOL Radio– the monthly webcast that highlights people who have a significant role in the community. And there are so many! (I hope you noticed that I used your name for this show; so you should feel honored.) Because I want to “give the people what they want” I am taking suggestions for topics.

And then there is MS SoftServe. Of course I’ve been talking about this with you for ages now. But things are ramping up. We have applied for our first grant and have many more apps on deck. Getting this site up and running is imminent and it will not only be invaluable to the newly diagnosed, but also to the long term-ers who don’t want to know about every possible MS symptom that may never effect them. (MSSoftServe.org is the staging ground.) And there are some amazing features for individualizing the learning experience. Oh, I forgot to tell you… I have another blog dedicated to MSSoftServe. Perhaps you’ve run into each other at the water cooler. This has been so helpful in keeping everyone up to date on our progress.

Please don’t look at me that way. I promise I won’t go so long without a meaningful entry. Hey, here’s what I’ll do… I won’t just post links to my other writings – I’ll post information about the links. That way people will stop and read you for a bit- and it will keep you update on where I am. How does that sound?

I won’t say how important you are to me; I don’t want it to sound hollow. I’ll just prove my loyalty to you and not go months without talking to you. You’ll see. It will be great!

Thanks for being my BBF*.

Love, Amy

*best blog forever!