You see Blog, I have proof ! The essays I’ve written for Health Central (that ones that have kept me so distracted) have been posted. So you can see first pixel that I’m on the up and up. Here are the links for MSCentral. Right here. Just below this text. You see them? No, I’m not being defensive! (Why is it always the other person who is defensive!) I sound like this because quite frankly, I feel funny that you thought I was in an illicit affair with another blog. There will never be another you, so please get that out of your default settings.
I know you’ll understand once you have context…
Your Next Neuro Appt: Making Sure You Remember Not to Forget
Everyone knows the first rule of preparedness when you are off to see your doctor. Bring a list. (If you didn’t know, go get a pen!) There are so many emotions that surround any doctor appointment; but when you are coping with a chronic, unpredictable, potentially progressive disease, (sheesh, just typing those words gives me the yucks!) the anxiety factor is huge. And anxiety does not partner well with clear thinking and remembering….. read more~
The Squeeky Wheel get’s a lot more than greased, it gets help.
Not everyone is like me. I’m a big-time communicator and very in touch with how I feel and what I need and I’m not afraid to ask for it. If I want a beautiful ceramic mug for my anniversary, I email a link to my husband. If I need a hug or to hear that I look nice, I tell the aforementioned person. This approach doesn’t work for everyone. Some want their needs to be understood (clairvoyance is very helpful here) and when they aren’t realized, there is disappointment. I’m all for putting it out on the table to increase the likelihood that I’ll get what I want (mug) or need (hug).read more~
Hell-O Mommy… Pay Attention
When Madeline was born, I had been living with Multiple Sclerosis for 13 years, and on that very day I started planning what would be our first conversation about MS. Ok, maybe not that day. But worrying about that conversation was a big part of my “first time mommy-how am I ever going to do this baby thing” anxiety package. So I learned the basics, the one’s that all first time parents need to know and are forced to figure out! You know… the holding, the changing, the nursing, the sling-ing, the bouncing, the soothing, the “sleeping” and that car seat that we couldn’t figure out-ing –These are the scenarios that humble us at a time when we thought we already knew how to do this “life” thing. With our new baby, we were reduced to preschoolers with their mittens clipped on their coat sleeves. And even though our learning curve kept us very distracted, I couldn’t ignore my fears of how this disease would impact my mom-abilities and how it would ultimately make Madeline feel. I needed to start prepping her for my unknown future as soon as possible! read more~
So blog, I hope this makes my case. I promise to keep you and all of our readers up to date on these writings. You will always be my first, blog, and I will never leave you in the internet dust. I promise~
Amy, I am deeply touched by your essay on when and how to tell your daughter that you are living with MS.
My own daughter was already in college when I came down with MS which spared us the fear that is so prominent for you and Madeline in her early years.
I have lived with MS now for 20 years and I have found that children (in my case, my grand children) are very adoptable.
I wish you and Madeline much joy together. She sounds like a thoughtful child who can learn to be unafraid of the uncertainty that MS brings to our lives.
Good to visit your blog.
Sorry about my lack of visits.
Spike’s, our dog, illness, quick death and being so ill jan/feb to march meant no visits
Since then I have been spending more time sitting in my wheelchair I have also not been visiting.
I just passed by to say hello.
I hope you are doing well.
I’m so sorry to hear about your dog. That is truly devastating. I’m sure there will be healing as time goes by- but that’s a wound that never fully recovers. Thanks for visiting and reaching out. I hope things get easier for you.
All the best.