MS SoftServe on Facebook

So yesterday I finally listed MS SoftServe as a cause on FB. I’ve been meaning to do it for months but as my friend Bonita once said, “I’m my own worst editor!”  Finally I  just did it– in true Nike sentiment, but with fair trade practices! And what an incredible experience it has become. I’m touched by the supportive words and am empowered by reinforcement that this site is truly wanted and needed by many. And when it comes to getting the word out– Facebook is the Faberge Organic Shampoo “and they told two friends, and so on and so on” on steroids! (Did I just make two commercial references in one paragraph? Uhg!)

It’s nice to have this outlet to fundraise for this non-profit , but it is really much more than that. MSSS is a grass roots effort- exhausting my every free minute along with good graces of people who care on the production of the site and all the elements in it. Therefore, amassing a large group of people who care, will expand the available resources as well as some funds to pay them. To me there is nothing more meaningful that people who are impacted by Multiple Sclerosis participating in this site’s production. A true FUBU (for us by us) entity with less shirts!

I also want to take a moment here to say that I’ve connected on FaceBook to a number of individuals who I’ve met on other MS sites, like PLM.  I must say that the facebook experience is truly unique, almost organic. Its as if everyone you know is milling about in this cyberworld, periodically stating what they are up to or what they believe in- and from that many things grow. It ranges from silly to witty banter to life observations and sometimes very meaningful conversation. I’ve connected to peers with MS – from the blogs and chatrooms of support based sites, and learn who they are in addition to their MS. Its been tremendously rewarding.  So- I encourage you to friend me on Facebook. (Amy Gurowitz) And while your there, check out my cause!  I’ll look forward to meeting you!

(P.S.- The “cause” link can be accessed even if you aren’t remotely interested in facebook. Something for everyone!)

4 thoughts on “MS SoftServe on Facebook

  1. Lisa Emrich says:

    Hey Amy, how about a link to the Cause page on Facebook? I’m sure that it will be evident from your Facebook page, but it might be easier to others to do directly there.

  2. herrad says:

    Hi Amy,
    What is MS Soft Serve and what cause.
    Do not want ise facebook just my preference.
    Have a good weekend.
    Lov e,

    • aglol says:

      Thanks for asking Herrad.
      MS SoftServe will be a website for people with MS who want customized learning. If you click on MS SoftServe on Youtube in my sidebar… it will bring you to a video that describes the concept. The site is on the web as a work-in-progress at It’s a registered non-profit and has received a grant from the National MS Society. Thanks for your interest!

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