In 1988 after an attempt at learning about my new diagnosis in a pre-Internet age, I swore of an MS education as it only served to fuel my fears about my unpredictable future. Having an incurable disease that is unique to each individual and constantly changing requires a life of learning. What I need to know to manage and treat my symptoms is always new. In addition the medical communities understanding is constantly evolving. If I want to stay current on my treatment, I need to be in the know. Yet to this day, when I approach learning on the Internet, I’m afraid of what I’m going to be exposed to you. Just today I was reading up on existing blogs and I learned about an MS symptom I had never heard of. Now I have more to lose sleep over.
The purpose of this blog is to document what it is to be a life-long learner with Multiple Sclerosis. I will share my experiences and invite you to share yours. Thoughts on how you learn, if the process brings out anxiety, what type of information you are looking for and when you are most often in the need to know, are all welcome. Anything you care to impart about your research and learning process. I do ask that if you decide to post that you keep it non-specific. I’d rather this blog not be a source for frightening information.
Thanks for reading…