I’ve always said that it is a cruel joke to expect a person living with MS - the chronic incurable disease that changes over years, months, heck – even days - to be his/her own advocate. I mean c’mon! How are we supposed to by-pass the emotions that are in-and-of-themselves paralyzing, to educate ourselves about our version of this disease that is always changing? (Read more and tell me how you balance it! I need all the suggestions I can get.)
Oh, and while I have your attention:
Tell me, do enjoy reading these posts? Do you find my writing witty, engaging, annoying? If the first two adjectives are true, take a moment and subscribe to MSLOL. With this status will get a special email telling you that you are about to miss something; something that might make your day better. And here is the cool part. You probably won’t be receiving a note more than once a month. I’m not one of these every week bloggers… No, I spread myself a bit too thin for that. So if I’m posting, it’s important. (at least from my perspective!) And lucky you. You don’t even have to scroll to the end of that column on the left. The link is just under the little paragraph “about amy.” There, no lower. You see it? It’s under “Get my email” and it says subscribe to MSLOL. I know, that doesn’t make sense… but it will get you where you need to be.
Oh, and if you forgot what you were supposed to be doing… its reading and commenting on this little post on Health Central’s MS site!
You know all about MS SoftServe, right?? If you’ve somehow gotten to my blog and haven’t heard, I bestow upon you a silly amount of links! (video, blog, the staging ground for the site in progress and the cause on facebook.)
Are you still with me? Do you feel informed? Good.
MS SoftServe is making some amazing progress with grants applied and (some) awarded, with a spring campaign in the planning , and fundraisers on the schedule. At the rate we are moving.. this site will be available for use before 2012 becomes 2013.
I know, I know, you are really behind this effort. You know it will make a difference for PWMS and those who love (or even like) us. But unfortunately for many of us, making a donation is just not in the budget. Well lucky you (us). The Find a Cure Panel is your ticket to karma (and so early in the year!) All you need is a few extra minutes to fill out an anonymous survey and Find a Cure Panel will donate $25 to MS SoftServe in your name. What is FACP you ask? . Here is the short version: FACP empowers people to impact on research. Click this link for details.
Once you’ve determined that this org is legit and you’re ready to sign on to furthering the understanding of MS for the researchers who are dedicated to finding a cure (not to mention the healthy donation to MS Softserve!) send an email to firstname.lastname@example.org and put MS SoftServe in the subject line to make sure the cause you care about is getting the proper props!
Then sit back and enjoy the rest of 2012 with your increased karma… making this information contribution a win/win situation!